Being a parent of a child who spends a lot of time in hospital, I’ve met some pretty amazing people. Some have children born with conditions, like Lewis, others have acquired conditions as the result of illness or injury. Irrespective of how your child came to have their diagnosis/illness, it is a tough, long road…Read more »

think my hubby may throttle me soon. I think he’s beginning to hate fairy lights!!! My youngest son loves lights and windmills etc so I am slowly but surely filling our garden with windmills, wind chimes and lights. Family and friends are helping me build up our sensory collection much to his annoyance (I think…Read more »

I’ve got a cousin who lives not far from me and we meet up here when we can. In the past we seemed to meet up only once every few years due to life and family and work commitments. We have started to see each other more regularly and it’s really brightened me up. Now…Read more »

I am an incredibly lucky person to live in the country I do as it has a health service that is accessible to all. So many people slag of the NHS and it’s waiting times, delayed operations and queues in Accident & Emergency but me, I cannot find fault with a service that has been…Read more »

It seems quite appropriate that last week was #MentalHealthAwarenessWeek. Mental Health is a subject that as a society we still shy away from talking about it and it continues to be as big a taboo now as years ago. Yes the Royals and all these celebs are putting their names to all the #MentalHealth charities…Read more »

I’ve started writing this post so many times I’ve lost count. My mood has been so up and down this week that when I start writing nothing makes sense. To be honest the way I write is what I think so I shouldn’t be surprised that what I write at the moment is a complete…Read more »

You have probably heard me moan many a time now that since falling ill with this debilitating condition that I have seemed to have ‘lost’ friendships in a very short space of time and that no matter how many offers of tea or coffee I’ve made, no-one has taken me up on them. Through the…Read more »

I’m the first to put my hands up and admit I struggle with my disability. Being in hospital and losing the small amount of independance I had really knocked my emotions and confidence for six. I feel a burden on those around me who care for me yet deep down I know that they do…Read more »

I’ve been spending a lot of time talking to wheelchair users of all ages and illnesses and one thing keeps being mentioned,so i thought that maybe now is the time to address a rather important subject for those of us confined to our chairs and dependant on others for helping us get about in day…Read more »

Not just emotionally (a whole other post to follow I’m sure) but physically. Oh My days how much weight can one person put on when trying to lose It??? It appears in my case to be a lot and boy is it getting to me!! 2 yrs ago just prior to falling ill I weighed…Read more »